**Long, rambling unfunny post alert**
Sometimes, you just don’t know what to do. You’ve tried everything, taken all the advice, read the books, and still the monster exists. Every 5 steps of progress is met with an 8-step hit that sends you back to Square Negative 3, and you start the process of clawing your way out again, hoping that this time is the last time. And it so very rarely is. The monster persists.
Having a child with ADHD is a lot like owning a pit bull. You know that he’s very intelligent, very sweet, very loving, very kind-hearted and tender, but to the world, he’s dangerous and misunderstood. Kids with ADHD act very much like that bratty, annoying, and sometimes violent kid that you see in the store and say “Man, if that was MY kid, I’d beat his ass/put him in timeout/ call CPS (Child Protective Services)/ send him to an orphanage.” You say that, seeing the mother, defeated and weary, as she tries and fails to get through to Junior that he can’t play in the coin fountain because it’s not allowed, and it’s not HER rule, it’s the mall’s rule. You say that, nod your head curtly, and go on to Bed Bath and Beyond, not knowing that she’s already tried all those things and more, and nothing seems to work consistently. It’s a rough existence, and worst of all, the kid can’t help it. 8YO has no friends, no one close. Kids don’t want to play with the kid who occasionally hits them and has violent fits of rage right in the middle of class. His best friend is his little brother, who thankfully does not have ADHD, and who by and large isn’t affected by 8YO’s outbursts. Some background:
Attention-Deficit Hyperactivity Disorder (ADHD), or Hyperkinetic Disorder as officially known in the UK (though ADHD is more commonly used), is generally considered to be a developmental disorder, largely neurological in nature, affecting about 5% of the world’s population. The disorder typically presents itself during childhood, and is characterized by a persistent pattern of inattention and/or hyperactivity, as well as forgetfulness, poor impulse control or impulsivity, and distractibility.
Let’s talk about each symptom individually, because then you can get a real picture of what an ADHD child is like to deal with.
- Inattention: When I call 8YO’s name, he doesn’t hear me. More to the point, his brain is so engaged with whatever else he’s doing that it won’t let him hear me. He has a very hard time in school, and doing homework at home.
- Hyperactivity: He goes non-stop when he’s on a task. He bounces. He talks incessantly. He asks a million questions. Every other sentence is “Watch me!” He dabbles in shit he’s not even supposed to touch. “How did triple A batteries get into the ice cream, 8YO?” “I don’t know.”
- Forgetfulness: A simple command, such as “go get in the shower”, is immediately forgotten and replaced with “sit down and watch Naruto”. He doesn’t remember where his shoes are. He doesn’t know where his backpack is. He can’t find the pair of pants I JUST gave him. And it’s not fake.
- Poor impulse control/Impulsivity: Ah, this is the money maker right here. ADHD kids just do things, as they occur to them, without running the idea through a filtering process to determine if it’s a smart move or not. Can’t wait your turn, or butt into a conversation? Rock on. Put bubblegum on the dog? Go for it. Push a kid down on the playground? Sure, why not? Get mad because someone yelled at you to stop flicking the lights off and on, call her a stupid idiot, hit her, hit her sister who came to her defense, bolt out of the front door of daycare, and then kick a hole in the drywall when you’re finally caught? Great idea. No impulse is ignored by ADHD kids.
- Distractibility: This is really a minor issue, compared to others. No task is completed without something (anything, everything) causing an utter break in concentration and focus.
Any one of these issues is enough to cause some trouble in certain situations, but when they’re all present as they are in 8YO, it makes a potent cocktail of trouble, disciplinary problems, and lack of friendships. These kids also tend to me emotionally immature, further reducing their ability to make same-age friends. In fact. 8YO gets along great with kids 5YO’s age, but not so much with other 8 year olds. Another aspect of ADHD is violence. Kids, particularly boys, have a hard time controlling their emotions when they have ADHD, particularly negative ones. Any perceived slight, any plan that goes awry, anything can set off a chain reaction that is incredibly difficult to stop or divert. Before 8YO was medicated, literally anything could set him off, even something as innocent as “We’re going to leave in 10 minutes instead of 5.” And once the fuse was lit, the subsequent explosion was tremendous. I once got a phone call from his daycare, telling me to come immediately. I was already on my way there, and when I arrived, I found him in the director’s office with two grown women laying on him to hold him down. Ordinarily this would be justification for a parent to whip a teacher’s ass, but he was in a full-blown rage fit, and couldn’t even be talked to. He was screaming and thrashing and making nonsense statements…it was scary. I got down in the floor, said his name a few times, and got no response. After failing to get him to even realize I was there, I finally picked him up by his ankles and held him upside-down until he finally realized what was going on. He shook his head like a dog does, looked at me through the fog, said “Daddy?” and started crying. What do you do when shit like that happens? It’s no joke when it’s that bad. The monster is real.
8YO is medicated. We weren’t that particular subset of parents who don’t believe in medicating their kids, or don’t think the meds work. They DO work, but they’re not miracle drugs, and you have to stay on top of them. In the 4 years he’s been medicated, he’s been on 4 different ADHD medications, and 2 other supplemental drugs that help with the side effects of the other meds (such as sleeplessness or, ironically enough, rage). He’s been on four because we constantly monitor his reaction to them, how well they’re working, when they wear off, and when he should either have his dosage changed, or when he needs another option altogether. In addition, we’ve changed his diet, instituted a fairly stable daily routine, and we talk with him all the time about making good choices. It’s an ongoing, ever-evolving process that has shown us some positive results. What we cannot stand, though, is when other people — particularly people who have no experience dealing with this type of thing every single day — try to tell us (a) what we should do, and/or (b) what we’re doing wrong. It’s frustrating when people who see him maybe 10 total days out of the year and who have zero time logged with a child with this disability tell us “Well, you need to do (insane advice) more, and maybe not (random suggestion) as much. And stop (unsupported claim) him like that!” Even medical professionals struggle with a once and for all solution, because there isn’t one. Something that works on Monday might not work on Thursday, and that thing that didn’t work in November might suddenly be the magic key in March. Stop giving us advice. We appreciate it, but it weighs as much as unsolicited advice from the guy who make change at the toll booth on the President George Bush Turnpike.
Many kids eventually grow out of ADHD, and go on to live normal, productive lives without any lingering affects. That is our sincere hope, but these statistics show the negative possibilities of having this condition.
During the elementary years an ADHD student will have more difficulties with work completion, productivity, planning, remembering things needed for school, and meeting deadlines. Oppositional and socially aggressive behavior is seen in 40-70 percent of children at this age. Even ADHD kids with average to above average intelligence show “chronic and severe under achievement”. Fully 46% of those with ADHD have been suspended and 11% expelled. Thirty seven percent of those with ADHD do not get a high school diploma even though many of them will receive special education services. The combined outcomes of the expulsion and dropout rates indicate that almost half of all ADHD students never finish high school. Only five percent of those with ADHD will get a college degree compared to twenty seven percent of the general population. (US Census, 2003)
It’s an uphill battle. After his latest incident at daycare (the hole-in-drywall episode I mentioned earlier), we’re taking him to see a child behavioral therapist this month (in addition to his psychiatrist), who hopefully will help him develop skills he needs to avoid reacting to his unpredictable emotional swings, and maybe foster some friendships. Hopefully she will succeed where we have failed. I didn’t really have a point to this post…I just wanted to talk it out. Thanks for listening.
Peace.
Reality edit: About 15 minutes after I posted this, DWW got a phone call from the principal at 8YO’s school. He had an episode, and will spend the rest of the day today in the front office. He called the music teacher a stupid idiot after she took away his recorder when he wouldn’t stop playing around with it. Then he bolted from the class. And so it goes.







18 comments
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January 8, 2008 at 3:16 pm
Elle
I love you, DD. This was such a heartfelt post. I’m not going to give you any advice on what to do, because, quite frankly…I don’t KNOW.
That sweet, sweet boy.
January 8, 2008 at 6:45 pm
DWW
Maybe I should send this to our grandparents so they can understand what it’s like everyday – instead of giving the unsolicited advice mentioned above. It truly is a never-ending struggle – Are we doing the right things? Is there something out there that we haven’t tried? Make sure you give 8YO the attention he needs without ignoring 5YO. Educate all of his teachers about his meds, behaviors, ADHD, etc.
Thanks for being such a great dad! I just hope we survive elementary school – we’ll worry about college later!
January 8, 2008 at 7:10 pm
summer
I work as a paraprofessional in elementary school in a classroom that is a blend of reg. ed students, special ed students and kids with ADHD and autistic children. In this class there is a reg. ed and special ed teacher as well as myself for support. I know it can be extremely hard to deal with as a parent. I often go home drained at the end of the day and thank my lucky stars that they are not my child. I feel for them as they often don’t understand why they’re different from the other students. Some don’t notice that they have no friends, others try but don’t know how to be one. Sometimes I don’t know how to deal with these students so I just try to give them the extra love they need. I wish you luck.
January 8, 2008 at 7:31 pm
saintseester
I am truly sorry that you guys have to struggle with this. I would not know what to do at all. It is very easy for people who don’t understand to be judgmental; it doesn’t excuse it, however.
January 9, 2008 at 7:55 am
Dixiechick
Damian..I so understand what you are going through…My heart aches for you and for your son…I too have an eight year old boy, that was diagnosed almost two years ago…it is a daily, ongoing battle, we have medication problems….sometimes, I just want to sit down and cry…but, I keep on keeping on…..he has shown improvements…..it has been awhile since he has had a “meltdown”…hang in there! Stay strong for him….don’t give up!
Dixie
January 9, 2008 at 1:53 pm
Natalie
It has to be hard and I am glad that you can share it all with us. You and DWW are supporting and loving parents and I am sure you are giving him all the help that you can. With time and patience I hope that it will get easier for all of you.
January 9, 2008 at 4:47 pm
txaggiechick
I can only imagine that parenting is one of the toughest jobs you’ll ever love. Raising a kid with ADHD sounds extremely challenging but fear not friends, I’m sure you’re doing the best for your little one that you can. You guys are great parents and 8YO is all the more better for it. At least from what I’m reading a lot of kids experience these challenges as kids but are also very gifted as well. They tend to be extremely creative and get the big picture. And extremely creative problem solvers. So good luck. you could be raising the next artistic sensation! Y’all are doing a great job!
January 9, 2008 at 7:56 pm
Geeky Tai-Tai
It is so difficult and heartbreaking at times to raise a child who is “different” from other children. You are wonderful parents and you’re doing your very best for both of your sons. As long as you know you have each other to lean on, you’ll make it because you’re a team!
January 9, 2008 at 8:39 pm
Kelley
I grew up as the sister of an ADHD boy and I hated the teachers that just thought he was a bad kid or the people that would give him the mean looks because he couldn’t control himself.
Things that helped Zach included music (drum lessons, piano lessons, whatever worked to help with his concentration), legos (anything to keep his hands busy), teachers who actually HAD experience dealing with this, and parents like you guys who actually cared.
I remember the one occasion he got mad at a friend in art class and chucked a glue bottle across the room, that was a classic.
I don’t have experience as a parent, but you’re doing everything right. The monitoring of his meds and not letting him walk around like a zombie is such a hard job by itself.
Good luck, you guys are doing wonderful
January 9, 2008 at 10:00 pm
weezel
I’m a long time reader…first time commenter. The only experience I have with an ADHD child is with a friend of my son’s. They’ve been friends since they were in kindergarten, they’re now 14. There are times that he’s been at my house and I’ve wanted to strangle him. He’s a handful, and I give kudos to any parent that handles an ADHD child on a daily basis. He’s never done the rage thing around my family. But sometimes he gets over-stimulated (still) and is enough to drive a person crazy. I love him to death though, he is a good-hearted, sweet, loving young man. I always try to remember before I get angry that he CAN’T always correct or stop the way he is behaving. He takes his medication, and I have worked with his parents and familiarized myself with his meds, his special food needs (Wow. Caffeine. You have an idea, I’m sure.), how to tell when he’s getting overstimulated, what to do when he starts displaying certain behaviors. But it’s all worth it. Hang in there. 8YO will find himself a friend. One that will understand and accept him. Hopefully, this child will also have parents that will see the light in 8YO and be understanding and work with you to help him.
Don’t give up! 8YO will find his place in the sun. Keep up the good work, you sound like a fabulous dad!
January 9, 2008 at 10:09 pm
Jane Hersey
I was at my wit’s end trying to figure out why my 5 year old daughter’s behavior was so often off the charts. None of the professionals I consulted had a clue. Fortunately I discovered that certain chemicals in her food were triggering her behaviors and when I removed them her behavior quickly became normal. That was 32 years ago and I am grateful every day for that information. Today I work with a non-profit organization that shows parents how to find out if their child’s symptoms are being triggered by some of the nasty chemicals routinely being added to our food. (Many of these additives are made from petroleum!)
For more information see http://www.ADDdiet.com or http://www.School-Lunch.org
January 10, 2008 at 10:11 am
Kalyani
One of the best things I’ve done to deal with my daughter’s difficult behavior was to make a commitment to get enough sleep. Not her—me! I am so much better at dealing with her behavior (and everything else) when I’m functioning with a complete brain. Never underestimate the value of taking care of your own physical needs when dealing with any external obstacle.
Another thought: Yesterday, my daughter asked if she could “growl and stomp her feet” when she’s angry. I said “Yeah, that’s a great idea.” She said that at her school, the only acceptable way to express anger is to frown. She said that they tell her to “just let it go.”
That method just doesn’t work with these kids. They need to have some sort of physical outlet, or their emotions will build up until they expolode. If you haven’t already (and knowing you, I’ll bet you have), work with his teachers to find an acceptable physical outlet for expressing strong emotions.
I love you, DD! You too, DWW, and hang in there!
January 10, 2008 at 11:35 am
randi
Darkness,
The fact that you are trying so hard to help your child makes you a fantastic father. More people should be this invested in their children. Tell anyone that tells you otherwise that they need to answer to me — a bad ass white bitch that doesn’t back away from a good ass kicking.
January 10, 2008 at 9:15 pm
Bre
I hope I don’t get stoned to death for suggesting this…I know I’m new, I know you don’t know me, I know I don’t know you… but have you ever done any research on trying an all-organic diet? I’ve read books and I began an organic diet last September. Before I started I got off a shitload of medicine I had been on for years… multiple anti-depressants, multiple anti-anxiety meds…I did the diet for weight loss (45 lbs down) but from what I’ve read it can have amazing effects on all kinds of medical problems. I used to get migraines and I don’t anymore – I know it’s not the same, but I’m just trying to show how it’s been beneficial to me. My depression is gone too. No more anxiety…
I am by no means trying to judge or act like I know what it’s been like for you and your family, or even what’s best. Just thought I’d throw it out there.
peace
January 11, 2008 at 10:26 am
Jer
As a former teacher and having kids with ADHD and then some in my classroom, I can’t agree more with everything the others have said. I applaud you and your wife for being the type of parents that deeply and truly want to help their child through something that, right now, is out of his control due to his age. I am also glad that you are NOT the parents that allow him to be on so much medication that he sits in the corner and practically drools all day because “mom and dad just can’t handle it.”
You’re good people, you’re great parents and don’t let anyone tell you differently.
January 14, 2008 at 1:42 am
katrice0321
At the end of the day, related or not, the nay-sayers just don’t matter. Grandma raised kids in a totally different day and age.
One of my son’s best friends has ADHD and can require quite a bit of attention and patience. No two kids are exactly the same, but one thing that seems to work for 100% of them is a great support system. 8YO obviously has that at home.
You guys are great. Cut yourselves some slack. And thanks for letting us in.
January 14, 2008 at 7:52 am
jalishouse
Hugs to you and your family.
August 10, 2009 at 6:01 am
asha1974
I SO can relate to everything written, my 8YO is now a 17YO and its true to say wat doesn’t work in November may be miravle in March and that ever ending circle of trying to make shit work, done NUMEROS parenting courses and they couldn’t understand why the star charts worked for only 3 days!!! It’s ongoing, but congratulations on yr tenacity and one day he will realise how lucky he has to have parents who cared!!! HE WILL! It may take some time for him to tell you that, but one dday…